I recently read that, when you stand and share your story in an empowering way your story will heal you and your story will heal someone else, When my heart problems started I kept it a secret. How could anyone get it when I didn't even really get it? I was the perfect picture of good health. On a few occasions, when I found myself stuck in the same cardiac ward surrounded by ladies over double my age, I would hear, "your're far to young to have heart problems."
I oftentimes found myself unable to answer life, it all just seemed so unfair. Through my darkness of times and struggles, I found comfort in my sadness. If that was even half of what depression feels like, it's such a sad and lonely place to be in, I documented every single little detail as a way of coping. Sometimes I hesitated over the "publish" button, but then I remembered that someone out there might need help and support too. I hope sharing will help you in whatever way it's meant to, thank you Katie for inviting me to share my story on your blog.
I'm such a big believer in the perfect storm, that it's not just one event, it's a series of events that build up to cause the perfect storm. My perfect storm struck in June 2013. I was 21, so much had happened in such a short amount of time. I had just had surgery on my knee, I was back in the gym getting fit and I had just got married.
I had pushed myself to loose weight to fit into my wedding dress. I had fallen in love with it and bought it right away. I pushed myself to not just walk properly again, but to walk in heels. I walked up and down the physiotherapy department using the bars for support as the physiotherapist hummed a wedding tune as I completed my exercises. I got married soon after and we left for our honeymoon to Lanzarote. While we were in Lanzarote I felt exhausted. Instead of enjoying nights out having dinner and drinks celebrating our new life together, I would eat and head back to the room to sleep. I blamed the stress of the wedding and all the physio appointments, but I now know that's when my perfect storm started.
After arriving home from our honeymoon, I started feeling funny, but I just couldn't explain it. I just didn't feel right, I would start sweating and shaking for no reason. I felt like I was at the end of a tunnel. I could hear and see, but not properly. Everything and everyone felt so far away. I would randomly black out and spent hours feeling and being sick. Brain fog would kick in and I would forget things instantly. For example, I would be reading a book and get to the bottom of a page and forget everything I had just read. The fatigue swallowed me up every day.It took a long time to figure out what was going on, endless tests and hospital stays, the list goes on and on. The only thing they ever found was that my heart was always beating fast, even when I was asleep. I was diagnosed with not one, but two, heart rhythm problems and told my heart's natural pacemaker wasn't working properly, for a reason no one knew. The doctors said it only really effected young females who work in a healthcare environment and I fitted right into that category.
I managed my condition, until passing became a huge part of my everyday life. Drugs wouldn't slow my heart down, they just made me suffer horrible side effects that made me feel even worse. I went through two heart ablations that were soon abandoned. Ablating some of my heart lowered the pace, but stubbornly it just crept back up again, It was too dangerous to fully ablate, so the only option was to continue managing it all with medication.
Everyone remembers the good old sex education classes at school, don't have sex without using protection, because you'll get pregnant and ruin your life. Well, I fell into this category, except it didn't ruin my life. It was the best thing that ever happened to me, but at the time when my heart problems emerged I really felt like my life was over. How could I be a mum and look after a small human when I needed to look after myself most days? The good old pill had failed to work, which probably had a lot to do with all the drugs being pumped into my body. Falling pregnant only a few weeks after my second failed ablation, I was sick, At the age of 23 I was being put on tables to treat heart failure and now I was pregnant. It felt like another huge dip and that I was stuck on that roller coaster of my unfair life. To make matters worse, my pregnancy was also in the high-risk category. At prenatal classes I felt nothing but jealousy watching the other woman write and stress over birth plans. I didn't even get a chance to look at the page, let alone make a plan, I felt I lost control of my life. I had no say over anything. The doctor described labor to me like running a marathon by highlighting the fact that I hadn't trained for the bigger question, which was how would my heart cope? Another huge obstacle we were facing was that my heart could get worse and, therefore, the baby might not grow properly. Our fears were met when a growth scan revealed at 35 weeks he had stopped growing, I was induced a full month early.
My heart did get worse after Kian was born. The point came when my cardiologist decided there was nothing left to try, except another ablation, and this time to not abandon it. This is because I couldn't be any worse off than I was, even if the worst case scenario did happen. I'll never forget that day agreeing to something that would either cure me or damage my heart for good. There was no rewind button and the damage couldn't be reversed, but it was worth the gamble, as I held onto every last piece of hope it could be fixed. I tried not to think outside the box that the worst case could happen.
My heart was pretty stubborn, but eventually my heart did slow down, except a little too much. My heart that used to easily beat up to 180bpm was now dropping randomly and only beating at 31bpm. The worst of it was when I collapsed at home. The paramedics arrived and hooked me up to the monitor. My heart was pausing and dropping with every minute that passed, my blood pressure was very low and my veins none existent. They made the decision that getting me to hospital with the crash team waiting, gave me the best chance to survive. I had no choice but to get a pacemaker fitted, which was my back up to when my heart failed to beat.
November 2015 I got my pacemaker implanted. As I felt the little battery under my chest propelling my heart to beat properly, it was a small reminder of the price I had to pay and all the hard times I had been through. I didn't regret any of the ablations because it improved my life. My heart being damaged was the best thing to happen to me, as crazy as it sounds, and I definitely wasn't worse off. Not only did I have the luxury of doing simple things I couldn't do before, but I also didn't have the fear of passing out. This is because I had the added bonus of the pacemaker kicking in when my heart did decide to race.
Ronan Keating once sang a song about life being a roller coaster, and as much as I dislike the song, he has a point. Having sinus node disease means my life will always be a roller coaster waiting for the next dip or bend, never knowing when my ride will go kaput. But if I learned anything from this experience, it's that it's always worth the gamble, especially when the gamble is to have good health.
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